Last night was a rough night. Paul had trouble getting Brandon to sleep and after 1 hour we just left for the hospital and let me my mom deal with him, 5 minutes after we left he was asleep. But it was a stressful hour. Once we got to the hospital Peter was not doing well he had a fever of 38.5c (nearly 102f) with a respiratory rate of 200. This was scary since he does have a heart condition that is waiting to be fixed and he was working so hard and fast to breath, but we knew this medicine he was put back on would raise his temp, just not this much. Paul and I each had our moments that we lost control of our emotions and had to walk away from Peters bedside. At one point we both had to leave because watching him was making us both more upset so even though we didn't want to leave we got in the car and made it home to rest. My mom moved her train to the next day so could we have an overlap of grandparents spending the night with us tonight. I'm very happy we have the pullout sofa in the toy room so we can have everyone at once.
At 3am when I woke to pump I called the NICU to get an update on Peter and his nurse told me his temperature went down to 37.5c and his respiratory rate was in the 150-160s. This was all because they lowered the dosage of medicine they had been giving him to keep the hole in his heart open.
At 6am I woke up to pump again and decided I would call the nurse n the NICU before the shift change (during shift change you can't call for one hour because the nurses are turning patients over to the day shift and running labs and paperwork). She said his temperature was down to 36.9 and respiratory rate was still around 150, but he was getting a little upset and feisty an hour ago so she is let him rest on his belly with his binky. Peter is totally going to get a binky baby until he starts breast-feeding.
We still have no clue if surgery will be today or tomorrow morning and it's making us feel extra nervous. We really hope for the surgery to happen sooner than later, but being the second case isn't always best because if things run behind with the 1st case then the 2nd one gets pushed to the next day. Let's cross our fingers that today this isn't the scenario.
-------------------------------------------------------------------------
It's the end of the day and Peter's surgery didn't happen so tomorrow morning he will be having the surgery. I'm nervous and just want this behind me so he can start recovery so he can come home. My baby will be 1 week old tomorrow and having open heart surgery. I still can not wrap my head around everything we've been through in the past week. Later this evening we are going to visit Peter before we go to bed.
Paul and I jus got home from our evening visit with Peter. We got there with no news or confirmation that surgery was definite for tomorrow morning and we both almost flipped out. But we stayed calm and just spoke with the doctor on call in the NICU for the night, we told him we felt Peter was not being treated fairly, that other babies were being given priority over him and we were told this surgery needs to happen in the first week of his life and tomorrow he is one week old. We gave a few more opinions and finally the doctor made a call to the cardiac department to get a hold of someone for an answer. It was very ridiculous that Peter might be only 8 hours away from surgery but no one can confirm it to us. I was mostly upset with the cardiac department for saying they would contact us today and never bothered to. But the doctor of the NICU came to the rescue and got a confirmation that Peter is the very first surgery tomorrow morning. Thank GOD! So tomorrow morning we are going to get to the NICU around 6:30-7am and I am adjusting my pumping schedule to make this work.
Sent from my iPad
No comments:
Post a Comment