Thursday I was so angry at the hospital staff, nurses, and doctors. Unless you are there the time they come by to see Peter you will never see them. I spent lunch time with Peter while Paul came home to watch Brandon. I met the speech therapist who comes by once a day to feed Peter by bottle. I first didn't like how she treated me like I didn't know how to hold, handle, or feed a new born by bottle. Did she not hear me say I have a 16 month old at home? Well she also started Peter's feed, fed him to fast and ended it not letting me continue because he spit up, she said we will try another bottle tomorrow. This upset me, I asked why we were only doing 1 bottle a day when he needs to practice. The therapist said she only gives 1 bottle a day to him that he should have been getting a bottle before every feeding, well he hadn't. So now this meant I had to take over the feeds since the nurses were not doing things right. I told Paul we are not leaving Peters side until he is home that night. Paul arranged to work from home Friday for me to spend the day at the hospital.
Friday I got to the hospital at 6:45am to make sure I did not miss the doctors meeting to discuss Peter. I also wanted to advocate for him that he should only be getting bottle feeds and to just take the feeding tube out, he chokes on it every time he takes a bottle and that's the reason he is throwing up. His cardiologist is so nice, it's just that she only works very early hours so I can never see her, she agreed to take my plan and put Peter on a 24 hour trial off the feeding tube, if he doesn't throw up and if he gains weight then he can possibly go home this weekend!
I stayed with Peter all day around 5:30pm Paul and Brandon came over to visit. I planned on staying the night, but Paul told me to stay home and he would be with Peter tonight and I can come back in the morning so we can switch. This way no one will touch Peter unless we give permission. You wouldn't believe how many times people came in to examine him or run tests right after he ate and fell back asleep, so no wonder the times we weren't there to sit with him this week he was throwing up his food, he was being moved around to much and not sleeping enough.
On my hospital duty Peter never threw up, he had 2 little burpy spit ups, but don't all baby's spit up a little. I feel like the nurses and doctors are trying to fit Peter into a feeding schedule that is more by the book than on demand. I told his nurses we won't be feeding him every 90 minutes when he is home so let's stop this now and let him tell us when he is hungry and just feed him when he wants some. October 1st is exact date Peter can start breastfeeding again. I tried to fight to get them to let me try, but he is still healing and we don't want to risk a leak in his lung cavity. But less than 2 weeks until this formula nightmare is finished.
Everyone cross your fingers, toes, eyes, ect, ect, ect that Peter can come home tomorrow or Sunday. Want our baby home, there is no reason for him to be there anymore.
Sent from my iPad
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