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Wednesday, September 7, 2011

September 6

September 6
I called the PICU this morning and the nurse told me Peter had a quiet nights, but around 6am they did an X-ray and found his right lung a bit cloudy. They were ordering an ultrasound to figure out what was wrong. Paul went to visit Peter and told me the doctors had discovered Peters right lung had collapsed and they were still waiting for the ultrasound technician to come to his room. The doctors reassured Paul that they will find out what caused this and take action from there, they have a couple options. But for now they increased his oxygen nasal flow to high and he is awake and fine.

This is exactly what Paul and I were worried about, Peter has been doing so well since his operation, he's had no set backs, and now 5 days after surgery he's having his first setback. The doctors are surprised because he's been doing so well. They ended up putting a chest tube in his lung to drain the fluid around it.

I went to visit baby Peter once Paul got home from work. He is now in his own room which means one of us can spend the night with him if we want to. I'm not sure we want to because it's just so noisy and his neighbor contributed to about 75% of the noise. The doctors and nurses told me they think the fluid in his lung is coming from his lymph node because the liquid looks like fat from his feedings. Later in the night we called and got the results, they were right his lymph node is dripping fat from his breast milk feedings into his lungs. So feeding have stopped until the cardiac team can figure out a plan of action. I was told by the doctor last night that if he had this they would have to stop breast milk feedings all together and he won't be able to return to breast milk for 6-8 weeks if ever. This news has broken my heart because pretty much the only thing that has been keeping me together is the fact that I'm contributing to Peters nourishment by pumping milk, and now to know my nearly 2 weeks of pumping was worthless brought me to tears last night.

Before I stop completely I'll talk to the doctors and nutritionist about their plan for Peter and then the lactation specialist on how to stop my milk without any complications. This isn't the way I pictured everything turning out, but other than this fluid problem he is fine, I just wish time would move faster, days have never moved so slow in my entire life.


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