Its such a nice relief to go in and see Peter and get no report from the nurse or doctor that he had an episode of this or that. So far he's having a good day. The doctor put him on isolation just until they do some tests to make sure he doesn't have a bacterial infection, this only means we have to wear a gown and gloves while in the room, this happened at the end of my visit. His doctor told me as long as we get help from the nurse we can hold Peter, holding him seems to be the better than medicine. He loves being held more than anything, I told him he's never being put down once he's home, Brandon will just have to get used to a baby in Mommy's arms.
He's back to being fed through his feeding tube as of 9am and after two unsuccessful starts to feeding it seems to be much better now that they are easing him into it. Yesterday they started him with 20ml per hour (I thought it was a bit to much since the most per hour he ever had was 12ml per hour and I turned out to be right). But they also gave him a less concentrated fat free formula and started him at 7ml per hour, it's been 4 hours on it and no spit up or vomiting....Yay Peter! His doctor increased it to 12ml per hour and will keep it there for a day. Once he gets used to this formula they will start him on the higher concentrated fat free formula and then switch him to a low fat formula. All while doing this in the next few days they will be watching his chest tube to make sure nothing is draining out that shouldn't. So far the drainage is decreasing and once they are 100% sure and comfortable that everything has healed the tube will be removed.
My poor baby also has gotten a terrible diaper rash from the medicine he is on and I think from not having someone around to know when he pooped, nurses only change them every hour. Luckily with some baby tylenol last night and his butt lathered in butt paste it's healing. Today he's much better and is off the Tylenol, I also noticed they are changing him even more frequently, I said something to the nurse last night and I think it ticked her off, I said if he was no e with me he'd be changed more frequently and not have this rash.
I spent about 4 hours with PJ tonight, I got to hold him and help change him....that is not easy with a chest tube in place and a wiggly baby. The doctors took Peter off the blood thinners and have made a new plan of action for his feeds. They are going slower with increasing the hourly amount. They will go up by 2's because after being at 12ml for a bit he spit up again. When I left tonight he was at 8ml per hour and sleeping. He had a very good day, his cheat tube is not draining much fluid any more so it looks like everything is healing, but I'm sure the will do a X-ray to make sure the tube is still in place tomorrow morning.
Between seeing Peter today Brandon and I actually got out of the house to run some much needed errands. It was nice to get off our street for a while, we've been getting out of the house, but only to walk about our street or play in the backyard. Now that I feel comfortable driving I don't mind getting out for a bit with my 1st baby. He's been so good these past 2 weeks, I know he can sense something is different because he has developed some new attachments and he'll freak out more when Paul or I leave the house without him, today he ran down the driveway after I pulled out and once I was off the street Paul told me he ran down the road pointing at every car that passed by saying Mama Mama Mama. I can't wait to just be at home with my two little baby's, Brandon has been so strong through all of this, hopefully baby brother will be home soon, we are getting very anxious to know when, but only Peter knows when he'll be ready.
Sent from my iPad
No comments:
Post a Comment