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Saturday, September 3, 2011

September 2.

September 2.
Peter had a great night. He stayed stable and nothing really happened which was exactly what was on the plan. This morning Paul and I brought his brother Mike with us to the PICU. It was nice to have him meet his nephew and explain some of the medicines in further detail, also having another doctor besides the one at Fairfax reassure us that his stats look good and he looks like he is doing well let's us rest easier when we are home.

Today Peters doctor said the goal is for Peter to pee a lot, which so far he has been and later today they will begin to start feeding him breast milk through a feeding tube that they inserted to his small intestine through his nose. It's such a relief that he's taking steps forward. He hasn't had any breast milk since my colostrom ran out on Monday. The NICU was storing all my breast milk in their deep freezer and we found out that the PICU will do the same. So until he is home we keep bringing a cooler full of little 2oz. bottles the hosptal has been providing us with, our freezer only has so much room.

The plan for Paul and I is to catch up on some rest today, we've been getting about 5 hours or less of sleep a day and I don't think we can take this schedule much longer.

We just got home from our evening visit with Peter. His nurse and doctor said he's doing very well. The nurse said she is going to ask the doctor if she can lower his blood pressure medication since he doesn't seem to need it so high anymore. Our little guy seems to be peeing a lot just like they wanted, but they did need to increase his diarrhetic in order for him to pee more. Tomorrow the surgeon wants to close his chest, but tonight they just need to make sure he continues to flush out all the fluids because they don't want to close him up if he is still retaining fluids.

One small victory at a time is our motto! If his blood pressure medicine is lowered tonight that is an amazing accomplishment. The doctors keep saying Peter must have read the book before going into surgery because he's doing everything right. I'm so proud of my strong baby boy! I can't wait to see him in the morning, we are going early to see him before the doctors make rounds. His doctor told us that shortly after morning rounds they will start the procedure of closing his chest and we aren't allowed in the room for that, and in all honesty I don't think I could handle watching him be sewn back together.


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